25 Year Old Blogs About Her Death

[Selah]

http://thestir.cafemom.com/in_the_news/102324/25_Year_Old_Live_Blogs

[quote]Last month, blogger Eva Markvoort turned on her video camera and told her blog readers: "My life is ending."

The 25-year-old had been chronicling her life with cystic fibrosis for nearly four years on her live journal, 65 Red Roses. She blogged from her hospital room.[/quote]

Her blog:

http://65redroses.livejournal.com/

[Hilde]

We had a 18 year old girl die recently who had blogged before her death from when she got her cancer diagnosis. The blog is going to be published as a book. It's interesting and difficult reading.

[add]

I'm watching the movie "My Sister's Keeper"
it's a different story about life and death.. a tear-jerker

If you read the book, you will be disappointed. They completely changed the ending, which was part of what made this a phenomenal story.

it is a worthy show just the same

[Totus Tuus]

That is really sad. But there's something I have to point out: Her dream was for organ donation. Organ donation is incompatible with our morals, because it requires that the donor be alive when the organs are taken. This is a little-known fact, but it is true. If you donate your organs, you will be killed for them (and your death will be justified because you will probably be in a terminal or critical condition anyway). But they can't wait for you to die naturally, because your heart has to be beating when the organs are taken.

So I can't advocate anything that is propelling organ donation, as sad as it is to see so many people who need it.

[elizabeth09]

That is very sad. Just wanting for one trasplant can be tough. I know someone from high school who just gotten her third trastplant and doing well.

Edited May 1, 2010 by elizabeth09

[Totus Tuus]

Edit: It's totally fine to donate a kidney or bone marrow or something that isn't vital to you while you're alive!! In fact, if anyone wants to be a bone marrow donor I know someone who needs it real bad.

[elizabeth09]

I wish people are kind. I mean that people need to be caring. Where?

[Totus Tuus]

[quote name='elizabeth09' date='01 May 2010 - 12:28 AM' timestamp='1272688114' post='2103034']
I wish people are kind. I mean that people need to be caring. Where?
[/quote]

Wait....



.... what did you just say?

[add]

[media][url="http://www.youtube.com/watch?v=C5_3_DhVn5o"]http://www.youtube.c...h?v=C5_3_DhVn5o[/url][/media]


must see, totally fiction movie and book with two huge very different endings that will rip you to pieces. it is a family picture of the richest kind.
The movie reflects back on the joys and sorrows of a family and how love no match for cancer

Edited May 1, 2010 by apparently

[Lilllabettt]

[quote name='Totus Tuus' date='30 April 2010 - 11:54 PM' timestamp='1272682474' post='2102987']
That is really sad. But there's something I have to point out: Her dream was for organ donation. Organ donation is incompatible with our morals, because it requires that the donor be alive when the organs are taken.
[/quote]


This is not true. The Charter for Health Care Workers produced by the Pontifical Council for Pastoral Assistance nicely lays out official Catholic teaching on health care issues, including IVF, euthanasia, and organ donation. It can be found [url="http://www.ewtn.com/library/curia/pcpaheal.htm"]here[/url]. An entire section is devoted to organ donation, but paragraph #87 is especially salient, in particular the bolded part. (this charter was approved [i]in toto[/i] by the CDF)


[quote]87. In the second case we are no longer concerned with a living person but a corpse. This must always be respected as a human corpse, but it no longer has the dignity of a subject and the end value of a living person. "A corpse is no longer, in the proper sense of the term, a subject of rights, because it is deprived of personality, which alone can be the subject of rights." Hence, "to put it to useful purposes, morally blameless and even noble" is a decision "not be condemned but to be positively justified."[180]

There must be certainty, however, that it is a corpse, to ensure that the removal of organs does not cause or even hasten death. The removal of organs from a corpse is legitimate when the certain death of the donor has been ascertained. Hence the duty of "taking steps to ensure that a corpse is not considered and treated as such before death has been duly verified."[181]

[b]In order that a person be considered a corpse, it is enough that cerebral death of the donor be ascertained, which consists in the "irreversible cessation of all cerebral activity." When total cerebral death is verified with certainty, that is, after the required tests, it is licit to remove organs and also to surrogate organic functions artificially in order to keep the organs alive with a view to a transplant.[/b][182][/quote]


Incidentally ...

did you know, the Pope is an organ donor?

From a 1999 Zenit article:

[quote]Cardinal Ratzinger, Is it always morally licit to donate one's organs?

CARD. RATZINGER: It certainly is licit to participate spontaneously and in full awareness in the culture
of transplants and the donation of organs in which we live. As for myself, I have agreed to give my organs
to whomever might be in need.

Does this mean you are registered with an association of donors?

CARD. RATZINGER: Yes, I registered years ago and I always carry this document with me; in addition to
personal data, it states that I offer my organs to help whomever is in need: it is simply an act of love.

What does it mean for a Christian to offer his own body for transplants?

CARD. RATZINGER: It means so many things. But, above all, it means -- I repeat -- to carry out an act of
love toward someone in need, toward a brother in difficulty. It is a free act of love, of availability, that
every person of good will can do at any time and for any brother. [/quote]

Organ donation is SUCH an important issue. And it is SO important to present an accurate picture of what the Church really teaches. It literally is a matter of life and death.

[Hilde]

Thank you. I was afraid that I had found something i disagree with the church on.

[Totus Tuus]

I got my information from Father Howard, a prominent bio-ethicist, in a class I took with him. I will double-check my facts. Perhaps we are still allowed to subject our bodies to organ donation, but I still stand by what I said re: needing to be alive when they are taken. For this reason, I think there's a discrepancy between our two sides of the story. I am checking my facts with the source, so when I find out what I need to correct, I will come back

[Selah]

I didn't really mean to turn this into a discussion on the ethics of organ donation (I am becoming one, btw). Eva's story is beautiful, and she left such a legacy of love and courage behind her when she died. It's hard...at least for me...not to fall in love with her

[Maggyie]

I heard about the 65 Roses blog on NPR. The report said that the blog was called that because when children with CF are little kids, they have a hard time saying cystic fibrosis, so the closest they come is 65 roses...

[dominicansoul]

[quote name='Selah' date='05 May 2010 - 07:53 PM' timestamp='1273103619' post='2105606']
I didn't really mean to turn this into a discussion on the ethics of organ donation (I am becoming one, btw). Eva's story is beautiful, and she left such a legacy of love and courage behind her when she died. It's hard...at least for me...not to fall in love with her
[/quote]



It puts things into perspective...about life in general...

It inspires me to make my life something beautiful for God, not waiting for tomorrow, but to begin today...because I don't really know how much time I have left...