lilac_angel Posted March 28, 2009 Author Share Posted March 28, 2009 (edited) [quote name='Hassan' post='1818409' date='Mar 27 2009, 11:33 PM']I know about anecephaly. That is why I questioned the title. In most instances of the condition I know of there is not "not brain" but rather most of the brain is missing with usually something like a brainstem remaining. I saw the video. I guess for me I saw a very sad scinario. In most instances the girld arms hung down somewhat limply. I mean I did not see a normal child. I understand why the parents wish for their baby to be "normal" but when I saw the video I did not see a healthy child at all. I saw a child who, if I did not see any explination, I would assume sustained some extream brain damage. That may just be me.[/quote] That's why "no brain" was quoted, and the term was used by the mother and likely other professionals to tell about the seriousness of the condition. I see it as a miracle, especially since the mom prayed that the baby would live and surprise many against the odds. Also, a huge prayer group was rooting for her. Sounded like directly answered prayers to me. Those babies also can't feel pain, so even if you don't see it as fortunate that she's alive or not normal, Faith is probably not suffering while living and showing off her beauty. Edited March 28, 2009 by lilac_angel Link to comment Share on other sites More sharing options...
Veridicus Posted March 28, 2009 Share Posted March 28, 2009 [quote name='lilac_angel' post='1818420' date='Mar 27 2009, 11:39 PM']That's why "no brain" was quoted, and the term was used by the mother and likely other professionals to tell about the seriousness of the condition. I see it as a miracle, especially since the mom prayed that the baby would live and surprise many against the odds. Sounded like directly answered prayers to me. Those babies also can't feel pain, so even if you don't see it as fortunate that she's alive, the baby is probably not suffering while living and showing off her beauty.[/quote] I would think the body would still react to pain; the key is that without a cerebral cortex it cannot be said that she is "aware" or "perceptive" in the scientific sense. Spinal reflex arcs would still be functional so if you touched her with a hot object her arm would pull away. Link to comment Share on other sites More sharing options...
Veridicus Posted March 28, 2009 Share Posted March 28, 2009 Truly this raises also sorts of ethical issues in my mind....this baby is basically a Terry Shaivo. She is "dead" by the same standards... I wonder if scientists would have problems cutting off her food and water or experimenting on her were she to become a ward of the state?... Link to comment Share on other sites More sharing options...
lilac_angel Posted March 28, 2009 Author Share Posted March 28, 2009 [quote name='Veridicus' post='1818426' date='Mar 27 2009, 11:41 PM']I would think the body would still react to pain; the key is that without a cerebral cortex it cannot be said that she is "aware" or "perceptive" in the scientific sense. Spinal reflex arcs would still be functional so if you touched her with a hot object her arm would pull away.[/quote] Interesting... I was just going off my understanding from a skimming of the Wikipedia article on it, and I thought it said something about not reacting to things either, but I (or it) could be wrong. Link to comment Share on other sites More sharing options...
Hassan Posted March 28, 2009 Share Posted March 28, 2009 [quote name='lilac_angel' post='1818420' date='Mar 27 2009, 11:39 PM']That's why "no brain" was quoted, and the term was used by the mother and likely other professionals to tell about the seriousness of the condition. I see it as a miracle, especially since the mom prayed that the baby would live and surprise many against the odds. Sounded like directly answered prayers to me. Those babies also can't feel pain, so even if you don't see it as fortunate that she's alive or not normal, Faith is probably not suffering while living and showing off her beauty.[/quote] What I find sad is mostly the parents. I mean I've worked with children born with extreme borth defects, some neural, and she reminds me of those children a great deal. That is not an expert oppinion at all. I have no formal training or education in this area (just to be absolutly clear). But looking at the blog the parents seem to be in denial. To be pretending that she is a normal child when, to me, she obviously is not. I'm not angry with them at all and I don't mean to give that impression, I just worry they are deluding themselves with the reality of their daughter and are setting themselves up for a big fall. I wsh them all the best in the world. I just feel it's a somwhat sick/sad situation. It reminds me of Animorphs. A book series I read as a child. Marco and Cassie (I think that's the names). These little aliens capture them and take them to their leader, they arrive and find the leader is long dead. Link to comment Share on other sites More sharing options...
Vincent Vega Posted March 28, 2009 Share Posted March 28, 2009 Very interesting. See also: [url="http://en.wikipedia.org/wiki/Baby_k"]http://en.wikipedia.org/wiki/Baby_k[/url] Link to comment Share on other sites More sharing options...
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